Understanding, not changing.
“We are not trying to change the person — we are changing the way the world understands them.”
TwinMind is a digital twin platform for people with Rett Syndrome, locked-in syndrome, and other rare neurological conditions where patients are fully conscious and cognitively aware, yet experience complete paralysis of almost all voluntary muscles. We translate the signals a person cannot speak — gaze, breath, movement, environment — into shared understanding for the people who love and care for them.
What powers it
Models trained on consented, anonymized care signals.
A living, evolving portrait of a unique child.
Surfaces the subtle cues caregivers feel but can't always name.
Anticipates emotional shifts before they escalate.
A second pair of eyes on the day.
Context that survives the bell.
Longitudinal patterns between sessions.
Have a loved one, a study, or an idea to share?
We read every message. Pilot families, clinicians, and patient advocates are especially welcome.
Held with the same care as the person we serve.
Signals are encrypted in transit and at rest. Raw video and audio never leave the device — only de-identified features are processed. Caregivers can export or delete the entire twin at any time.
Every observer (parent, teacher, therapist) is invited explicitly and visible to the family or advocate. Sharing is granular and revocable. We do not sell data, ever, and we do not train foundation models on your loved one.
TwinMind supports — it does not replace — medical or therapeutic judgment. Predictions are probabilistic guides for caregivers, not diagnoses or treatment. Always consult a qualified clinician for medical decisions.
TwinMind is a research prototype. It is not a medical device and has not been evaluated by the FDA, EMA, or equivalent authorities. In an emergency, contact local emergency services.