Child profile
Lily, 7 years old
Diagnosed with classic Rett Syndrome. Non-verbal communicator who expresses joy through sustained eye contact and rhythmic hand movements.
Likes
Acoustic guitarWarm bathsSister's voiceSoft blanketsSunrise lightVanilla scent
Dislikes
Sudden loud soundsCold handsCrowded roomsFlickering lights
Known triggers
- Fluorescent ceiling lightshigh
- Unfamiliar voices in close proximitymedium
- Abrupt schedule changesmedium
- Background TV chatterlow
Communication style
Lily uses an eye-gaze AAC device for choices and communicates emotion through:
- Sustained gaze — interest or affection
- Hand wringing — self-regulation, often when uncertain
- Vocalizations rising in pitch — building excitement or discomfort
Favorite calming activities
Lullaby in C major
Gentle rocking
Weighted lap pad
Window watching